Haemophilia Comprehensive Care Centre

Consultants

Centre Directors*

Consultant Haematologist                           Dr. J. Hermans*   

Specialist Haematologist                              Dr. E. Millen*

Consultant Haematologist                            Dr. G. Swallow

Paediatric Consultant Haematologist         Dr. S. Stokley

 

Nursing Team

Haemophilia Clinical Nurse Specialist        Helen Seymour

Haemophilia Clinical Nurse Specialist        Kathrina Anisco

Haemophilia Clinical Nurse Specialist        Linda Trower

Haemophilia Clinical Nurse Specialist        Helen Matthews

 

Admin/Data 

Haemophilia Data Manager                           Lauren Hodgman

Haemophilia Administration Assistant         Kinza Walker

 

Health Allied Professionals 

Haemophilia Clinical Psychologist                         ………………….

Haemophilia Social Worker                        Sumaiya Munawar

Adult & Paediatric Physiotherapist          Ros Teweleit

 

Adult Bleeding Disorder Clinic 

Every Monday morning (except bank/public holidays) in the Leengate Building, QMC for:

• New patient GP and consultant referrals
• Follow-up of patients with severe haemophilia (minimum six-monthly) moderate and mild haemophilia, VWD and other bleeding disorders (minimum 12-monthly)

 

Paediatric Bleeding Disorder Clinic

Thursday mornings and Monday afternoons in Paediatric Outpatients Clinic South & East, B floor, QMC for:

• New patient referrals from GPs/consultants
• Children under 16 with severe haemophilia and other bleeding disorders

 

Nurse-Led Adult Telephone Clinic 

Every Wednesday afternoon (except bank/public holidays) for follow up of stable patients with non-severe bleeding disorders. 

 

Pregnancy Assesment Clinic

Every Tuesday morning in the Antenatal Clinic, B Floor, QMC for:

• Women with bleeding disorders/haemophilia carriers who are pregnant
• Women requiring pre-pregnancy counselling
• Women (and their partners) requiring pre-natal diagnosis 

 

Appointment Information

• To cancel or change your appointment, please contact your booking team 
• If you are a Carer or assisting a patient with dementia, please tell reception when you arrive.
• If you require an Interpreter, please contact your booking team.
• To help you prepare for your visit and be safe in our care, please visit: www.nuh.nhs.uk/patients-visitors

Every Tuesday morning in the antenatal clinic, B Floor, QMC for:

• Women with bleeding disorders/haemophilia carriers who are pregnant
• Women requiring pre-pregnancy counselling
• Women (and their partners) requiring pre-natal diagnosis 

Contact us

Routine enquiries
Tel: 0115 970 9994 or 0115 924 9924 Ext: 81994
If the unit is closed please leave an answerphone message and we will return your call the next working day.

Emergencies
The unit is open from 8.30am to 4.30pm. In an emergency outside these hours call the hospital switchboard.
Tel: 0115 924 9924 and ask the operator to contact the on-call haematology registrar.

 

Location

Haemophilia Treatment Room, Anticoagulation Clinic
Queen's Medical Centre
East Block
D Floor

 

Getting to us

You will need to use a lift or scale stairs to access this serivce.

Travelling to our Hospitals

• Please use public transport if possible due to limited parking availability.
• Medilink 'Park and Ride' bus service is available from Queens Drive or Wilkinson Street. This drops off at the QMC and City Hospital.
• There is a tram stop available at QMC. Further information: www.thetram.net.
• A limited number of Blue Badge parking spaces are available at both sites.
• Payment for parking is via the pay & display machines. Card payments are accepted in all locations. However, cash payments are limited.
• If you have a low income or in receipt of certain benefits, you may be entitled to help with the cost of travelling to receive NHS Treatment. Please enquire at QMC’s General Office, City Hospital’s Cashiers Office, or the NHS Treatment Centre Main Reception.

 

Hospital Transport

If a medical condition prevents you from using public or private transport, please ring Hospital Transport two weeks before your appointment.

If you are registered with a GP in, please contact:

• Nottinghamshire – ERS Medical: 0330 3800 570.
• Derbyshire – EMAS: 0300 300 3434.
• Leicestershire and Rutland - Thames Ambulance Service: 0345 241 3012.
• Lincolnshire – Thames Ambulance Service: 0808 164 4586.
• North and Northeast Lincolnshire – Thames Ambulance Service: 0808 164 3030.

 

National & Local Support Groups

Haemophilia Society - The Haemophilia Society – Together For Life | The Haemophilia Society

World Federation of Haemophilia - Home – WFH - World Federation of Hemophilia

Global Treatment Centre Directory - Find local support – WFH - World Federation of Hemophilia

Haemophilia Centre Locator - hclocator.org/centrelocator/

United Kingdom Haemophilia Centres Doctors Organisation -  Patient Information – UKHCDO

Emotional Wellbeing 

The webpage below provides information about what mental health is and what support is available 

Protecting and improving your mental wellbeing | Nottinghamshire County Council

If you need urgent crisis support, call the Nottinghamshire Mental Health Crisis Line on 0808 196 3779 (24/7) or the Samaritans on 116 123 (24/7)

Sexual Health 

NUH provide a free and confidential Sexual Health Service. For more information visit: Sexual Health Services | NUH

For more information around Sexual Health & Bleeding Disorders:- Sex and bleeding disorders | The Haemophilia Society

Home Therapy 

Haemtrack is a secure therapy recording system, connecting patients and clinicians through the Haemtrack web app. Haemtrack enables patients to record all therapies as they occur, and allows clinicians to see up-to-date therapy information to help monitor, optimise and improve patient care. 

Haemtrack – Home Therapy Support Service (mdsas.com)

Dental Care

Good dental care is essential for everyone. If you have a bleeding disorder, looking after your teeth, mouth and gum is especially important. 

Dental care for adults with a bleeding disorder | The Haemophilia Society

Social Care 

Adult: Adult social care | Nottinghamshire County Council

Children: Children's social care | Nottinghamshire County Council

Carers

Support for carers | Nottinghamshire County Council

Adopting a Healthy Lifestyle

Many factors affect our health and wellbeing including finances, feeding our families, heating our homes, mental health worries, physical health worries and community or family support. 

Here at NUH we have a Health Improvement team in Urgent and Emergency Care with dedicated Link Workers based in the QMC Emergency Department to help recognise patients needing extra help to live a healthier life aiming to prevent long term illness - we want to embed a culture of health promotion and injury / disease prevention in our pathways.  

You can access the resources here to support you to make lifestyle choices which will elp you live longer, happier, healthier and more independent lives. At NUH we want to ensure everyone has access to support available in Nottinghamshire and ensure all the information you need to make the first steps is easily available here in one place

General Health Information | NUH

Travel Advice 

Please find the Travel Information Leaflet for patients with Bleeding Disorders in 'Useful Links'. 

Also for more Travel Advice: 

Travel | The Haemophilia Society

EUHANET hclocator.org/centrelocator/ 

Find local support – WFH - World Federation of Hemophilia

Vaccination Advice 

We usually advise that people with bleeding disorders receive vaccines as an injection under the skin (sub-cutaneous). However, the COVID-19 vaccine must be given as an injection into the muscle (intra-muscular).

Anyone who has had an injection into a muscle could develop a bruise within the muscle (haematoma) afterwards. This risk may be higher in people with bleeding disorders.

Please tell the person giving you the vaccine that you have a bleeding disorder and show them your alert card and this leaflet.

People with the following diagnoses DO NOT need to take any additional precautions before they have the vaccine:

• Haemophilia A and B with factor level above 10%
• Haemophilia A on Emicizumab (Hemlibra)
• Acquired haemophilia with normal factor 8 level.
• Mild bleeding disorders—including mild von Willebrand disease; low von Willebrand factor; mild platelet function disorders; dysfibrinogenaemia; clotting factor deficiencies with factor levels above 10%

People with the following diagnoses WILL need to have treatment before their vaccination:

• People with severe or moderate haemophilia who can give their own factor treatment at home need to have a dose of factor concentrate before their vaccination
• If you are on prophylaxis, please take your usual factor prophylaxis dose on the day of your vaccination.
• If you give treatment on demand at home, please take your mild bleed dose of factor before your vaccination.
• Haemophilia A or B with factor levels less than 10%
• Severe (Type 3) von Willebrand disease

Please call us to discuss what you need.

People with the following diagnoses MAY need to have treatment before their vaccination:

• Von Willebrand disease with factor levels less than 10%
• Other factor deficiencies with factor levels less than 10%
• Bernard Soulier syndrome
• Glanzmann’s thrombasthenia

Please call us to discuss if you need any treatment.

 

Further Support 

Benefits

Benefits - GOV.UK (www.gov.uk)

Benefits | The Haemophilia Society

Immigration Queries & Advice 

UK Visas and Immigration - GOV.UK (www.gov.uk)

Every Wednesday afternoon (except bank/public holidays) for follow up of stable patients with non-severe bleeding disorders.